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Food and Drug Administration approved a drug to treat Alzheimer's was LBD has its own special challenges, Hu said. Hu compares a LBD diagnosis to the story about five blind monks feeling an elephant.

PWDP Ep 13: Living ASAP with Lewy Body Dementia: Robert Bowles, Jr. (part 1 of 2)

Each specialist studies a different part of the disease, making it difficult to see the big picture. While Alzheimer's typically attacks cognitive function first, he said LBD isn't consistent. It may start with vision issues or hallucinations. It's not atypical for a patient of his to see multiple specialists before coming to him.

Sidny Hieronymus, 70, of Sandy Springs, Ga. He'd begin "acting out" his dreams, moving his arms and legs. She had to wrap her arms around him to calm him down. By , he was told he had vertigo. Soon, he was taking frequent naps and had difficulty paying bills and preparing dinner.

Lewy body dementia — not Alzheimer's, but just as deadly

Doctors told him he probably had Alzheimer's. Over time, Jim no longer wanted to leave the house without her. With his neurological issues, his movements became jerky. He fell a lot.

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He would just sit and watch the news. In early , Jim started having hallucinations. Soon, he couldn't read.


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And later in the year, he could no longer speak clearly. Sidny took care of him as long as she could until he needed around-the-clock care. By the fall of , she reluctantly placed her husband in a memory care facility, where he spent his final nine months. He'd be in his wheelchair, and when he saw me, he'd try to stand up and walk to me with a big smile.

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During visits, she'd sit him by the window and play him jazz music by John Coltrane off Pandora. He was a drummer back in the day. For better or worse, he was aware of what was going on until the end, something that is not necessarily the case with Alzheimer's. There are only a few medicines to help people with LBD, Hu said. His patient Bowles takes just two.

It's about exercise.

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It's about reducing stress. It's about having a purpose in life. It's about social and cognitive interactions.


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These in clinical trials have proven to improve brain health. Bowles, now six years since diagnosis, can still walk OK and speak at functions about the disease without too many complications. He eats out three or four times a week, shops at Walmart and goes to church. But new symptoms pop up every so often.

He is now supersensitive to loud noises and wears earplugs. Sometimes, when his brain tells his legs to move forward, they go backward or to the left. He is planning to cut back on his speaking schedule this year.

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Thomaston, GA ratio of number of residents to the number of sex offenders compared to nearest cities: Note: Higher values mean more residents per sex offender Barnesville : Zebulon : The Rock : 97 Concord : 80 Thomaston : 76 Yatesville : 57 Molena : 39 Culloden : 39 Meansville : Thomaston, GA ratio of number of residents to the number of sex offenders compared to county and state: Note: Higher values mean more residents per sex offender Georgia: Upson County: Thomaston : Offense date: , Conviction date: , Probation: